The 6 PM event, organized by patients with FSHD and their families, features Blier (artistic director of the New York Festival of Song) and singer Kaye (The Phantom of the Opera, Nice Work if You Can Get It) set against the backdrop of the Botanical Garden.
"It's important for the audience to see that people living with FSHD are active, passionate and leaders in their fields," said Blie, who has battled with FSHD his entire adult life. "And I relish any opportunity to collaborate with Judy Kaye – a beautiful talent and a beloved colleague."
FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease that causes progressive weakness, usually starting with the face, shoulder and arms, but which can attack almost any skeletal muscle. Currently, there is no treatment or cure.
Proceeds from the evening benefit The FSH Society, which "provides millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers."